It has been a long week. My time has been filled with doctor appointments and school.
James went in on Monday with a sore throat. He came out with a positive result for strep and a prescription to treat the illness. He was glad it was strep and not a virus. The way he figured was if it was strep he would feel better in 24 hours after taking the meds. He explained to me if it was a virus he would feel sick for longer. I thought it wasn't bad reasoning for a 10 year old and told him I agreed.
Tuesday was full with Zak's MRI. There were issues - as there always are; but everything went pretty well. He did have two seizures while they were trying to sedate him for the procedure. (That was not fun.) They had misplaced the orders for the blood work and could not find the other lab orders that the doctor had made. All of these things are little things; but I can be honest and say I am very tired of dealing with this. I am finding my patience about gone when it comes to dealing with hospital staff in regards to the care of my son. I am thankful that other parents with special needs kids have said the same thing. After five years of dealing with this I am tired.
The benefit of all of this is that it seems God is giving direction. I will be honest it is not the direction that I had hoped I would find. It seems over and over the medical doctors and staff are unable to find out what is wrong and what we can do to fix it. I will say that this has caused me some distress until my husband said, "We prayed that God would show us - and He has clearly showed us that the answer does not lie here." My hope and prayer has always been to take Zak to the highest level HE can go. I understand there are challenges and there are some limitations; but I do not want to handicap him further with his limitations. All such a fine balance.
We head out tomorrow for yet another test. Since the test on Tuesday we have had a lot more stimming issues with him. I am not sure if it was the medication they had to use or the seizures that occurred. I am just praying for wisdom.
God strengthened me with His word this morning:
"The LORD your God which goeth before you, He shall fight for you, according to all that He did for you in Egypt before your eyes."
- Duet. 1:30
God gave us Zak and his issues are His battle. I am just praying that He will lead and we will follow. I am so thankful for His Word the brings encouragement and direction. What a mighty God we serve. Excitedly I await for His answers - I know He will lead us.