There still is not much change in Rachel's pain tonight. We were hoping the procedure would help things a bit; but that has not happened. It has been hard to see her hurting and not be able to do anything to help her.
She still is having a lot of trouble eating. We meet with the doctor tomorrow. They told us we would be discussing a feeding tube at this visit. She has lost a lot of weight here in the past 3 weeks. However, she is swallowing better than she was - so I am hopeful that we will be able to give it a little more time before having to do a feeding tube.
All PT and OT therapy has been canceled until the doctor clears her to resume again. This is hard; because she needs the therapy to get strong for the start of school. In some ways we are loosing ground that she had gained in the previous therapy sessions now that she is back in bed completely.
We are looking to God for answers. Thanks so much for all your prayers. The many emails and comments that you all have sent have been either read to Rachel or she has been able to read them on her good days. They mean so much to her and to us. Thank you! We can sense your prayers and know that God is working even though we are unsure of all the details. What a mighty God we serve!!