Just a quick update on Rachel. We finally got the results back from her Tcell test. (This was the one to test if there was something seriously wrong with her immune system.) The test came back normal - and everything looks good in regards to her immune system. This was wonderful news! We were so thankful that something so serious was officially ruled out!
They are looking into two different things in regards to the sore on her lip. One is that she has a drug resistant virus in her lip. They are going to do another culture if another one comes on. (We are currently waiting for her lip to heal - it is pretty nasty right now.)
The other thought is that the virus is in her tonsils. She has had quite inflamed tonsils for the past several months. She also has a chronic sore throat. These two things make them think that if the virus is lodged in her tonsils it could be causing the frequent sores on her lips. We meet with the ENT on Friday to get his opinion on the condition of the tonsils.
She still has a lot of pain in her nerves and joints. The feel that this is continued issue from both the shingles in December and also the GBS from this July. We are working with pain meds to manage the pain. It seems a fine line to walk in the regard. We would like her off of all pain medication - but when she is off of the meds she is in so much pain she is not able to get around well. So we continue to walk the narrow line - and hope and pray we are making the right decision.
Overall, we are very happy with how things are progressing. We have ruled out a lot; and what they are looking at now really seems quite probable for the recurrent infections.
Thanks so much for all your prayers. I feel like I am starting to see the light at the end of the tunnel. (It looks really really good! ) :)
Been out running errands all day. I am so tired. It is off to bed I go - even at an early hour.